High Care Needs Support
Young people with high care needs
are just like you, your friends and your loved ones. The only difference is that they have acquired a debilitating injury or illness (such as Multiple Sclerosis or an Acquired Brain Injury) that has left them requiring round-the-clock care.
Most would never have imagined that they would ever require such a high level of care, particularly so early in life.
Specialised care and equipment is required to help with day-to-day living because of profound or severe limitation in the core activities of communication, mobility and self-care. Assistance may be needed with a broad range of daily activities including bathing, dressing, feeding, toileting and mobility. In addition, they may require medical care such as dispensing of medication, peg or nasal feeding, rehabilitation programs and, at the far extreme, they might need assistance to breathe through ventilation or a tracheotomy.
Right now, there is a desperate gap in Australia’s disability care and support system, and in many cases, families are primarily responsible for meeting the 24/7 care needs of their family member. Many families are struggling physically, emotionally and financially.
In 2009, there were 2.6 million carers who provided assistance to those who needed help because of disability or old age. Just under one third of these (29%) were primary carers; that is, people who provided the majority of the informal help needed by a person with a disability or aged 60 years and over. Over two-thirds of primary carers (68%) were women (Australian Bureau of Statistics).
Youngcare’s goal is to continue to work with local, state and federal governments, and the sector to bring about national policy and systems changes so that every young person requiring appropriate care and accommodation will receive it.
In the meantime, Youngcare has introduced a range of initiatives, including the At Home Care Grants program
and Youngcare Connect
, to deliver greater choice to those who need it.