0

Alexis' Story

For kids like Alexis, there should be more to childhood than just being sick.

When Alexis was born, her mother Kristi knew she was going to be a fighter from the very beginning.

Alexis smiling in her wheelchair in hospital

Donate now

Born at 28 weeks, Alexis who is now 3 years old spent 11 weeks in the neonatal ward before her family were allowed to take her home.

As Alexis started to grow, it became obvious that something was not right. At six months of age, baby Alexis stopped using her legs.

Nine days after her 2nd birthday, Alexis was diagnosed with Spinal Muscular Atrophy, type two. The result of this condition means that Alexis experiences muscle weakness. She is unable to bear weight on her legs and cannot lift her head up. Because of this, Alexis’ respiratory system is severely impacted.

“It makes her cry with sickness because she’s not strong enough. It just sits there and develops into pneumonia, chest infections, she’s had it all. Every time she has a cold she is in hospital – she can’t shake it. A normal healthy child when they get sick they take about a week to get better, she takes about a month.” – Kristi

Give the gift of childhood now

The only way for Alexis’ sickness to be cleared from her system is through the use of a Cough Assist Machine. This machine imitates the act of a cough – a quick breath of air effectively removing secretions from the lungs. The only one available to the family was through the hospital.

“The last time she was sick she was there for nine days.” – Kristi

In a normal week, Alexis has appointments four days a week at the hospital. On top of the stress of having a sick child, caring for another child at home, and the financial stress, Kristi has been rejected for the carer’s pension.

“I just want her to be as happy and as healthy as possible I really can’t ask for much more.” – Kristi

“There is a life expectancy with her condition, we don’t know – she could pass in early adulthood or she could surprise us all and get to 40 or something like that. Her future is just unknown, we don’t know what to expect.

Equipment such as a cough assist machine helps so much to give her better quality of life. With the cough assist machine, Alexis spends less time in hospital so we are able to give the assistance at home.” – Kristi

Help create a future for Alexis

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

De Luca Corp
Wolff Group
Just Photography
Cakes & Sh!t
Vuly
Care Tech
Savills
Shine Lawyers
Tradelink
Neals
Betta Home Living
McCabe Curwood
Channel Nine
AWIC - Awesome Women In Construction
ALS Global
HSF
Just Cause Bunch
National Storage
Style
Birdsville Social Club
Bruce Lynton
Spot Productinons
Knight Frank
Vertica Capital
Women's Weekly
EY
MTAQ
Thrifty
Tatts Group
Carbone
Story Bride Hotel
Queensland Government
Cutting Edge
Flight Centre Foundation
Nova
Birdsville Roadhouse
Morgans
Hand Heart Pocket
Audio Visual Elements
Sage
MGD Private
Hopgood Ganim
ANZ
Aurora Adventures
IOR Petroleum
Broncos Charity Fund
MMO Interiors
Rivergum Homes
Servcorp
LAS logo
CUB
Vincents
Brisbane Airport
Une Parkinson Foundation
Queensland Rail
BDO
Taylor Byrne
Sleepy's
Tattersalls Club
One Harvest - love beats
CV Services
Coates
The Co Group
Vantage Performance
FKG
Good2give
Doug Hall Foundation
MS Queensland
ALS
QIC
Eureka Landscaping
DAE
Collins Food
Bunnamagoo
Motorola Solutions
Pilot
Clark Real Estate
Media Merchants
Braggs Signs
Triffid
Select AV
Network First
Keystone
Brighton Homes
Birdsville Hotel
Forte Catering
Merlo
J W Bell & Associates
Ozdent
Batercard