0

Alexis' Story

For kids like Alexis, there should be more to childhood than just being sick.

When Alexis was born, her mother Kristi knew she was going to be a fighter from the very beginning.

Alexis smiling in her wheelchair in hospital

Donate now

Born at 28 weeks, Alexis who is now 3 years old spent 11 weeks in the neonatal ward before her family were allowed to take her home.

As Alexis started to grow, it became obvious that something was not right. At six months of age, baby Alexis stopped using her legs.

Nine days after her 2nd birthday, Alexis was diagnosed with Spinal Muscular Atrophy, type two. The result of this condition means that Alexis experiences muscle weakness. She is unable to bear weight on her legs and cannot lift her head up. Because of this, Alexis’ respiratory system is severely impacted.

“It makes her cry with sickness because she’s not strong enough. It just sits there and develops into pneumonia, chest infections, she’s had it all. Every time she has a cold she is in hospital – she can’t shake it. A normal healthy child when they get sick they take about a week to get better, she takes about a month.” – Kristi

Give the gift of childhood now

The only way for Alexis’ sickness to be cleared from her system is through the use of a Cough Assist Machine. This machine imitates the act of a cough – a quick breath of air effectively removing secretions from the lungs. The only one available to the family was through the hospital.

“The last time she was sick she was there for nine days.” – Kristi

In a normal week, Alexis has appointments four days a week at the hospital. On top of the stress of having a sick child, caring for another child at home, and the financial stress, Kristi has been rejected for the carer’s pension.

“I just want her to be as happy and as healthy as possible I really can’t ask for much more.” – Kristi

“There is a life expectancy with her condition, we don’t know – she could pass in early adulthood or she could surprise us all and get to 40 or something like that. Her future is just unknown, we don’t know what to expect.

Equipment such as a cough assist machine helps so much to give her better quality of life. With the cough assist machine, Alexis spends less time in hospital so we are able to give the assistance at home.” – Kristi

Help create a future for Alexis

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

Cutting Edge
FKG
Media Merchants
Merlo
Spot Productinons
Forte Catering
Betta Home Living
Channel Nine
EY
GNK
McCabe Curwood
De Luca Corp
Bunnamagoo
MMO Interiors
Tatts Group
Birdsville Hotel
Vertica Capital
Sage
Aurora Adventures
Birdsville Social Club
Story Bride Hotel
Hopgood Ganim
Thrifty
Women's Weekly
Care Tech
Good2give
LAS logo
Collins Food
AWIC - Awesome Women In Construction
Braggs Signs
ALS Global
Just Cause Bunch
Queensland Government
Triffid
Rivergum Homes
Wolff Group
Keystone
Hand Heart Pocket
Shine Lawyers
Nova
Motorola Solutions
Neals
ANZ
Vincents
HSF
Brighton Homes
Birdsville Roadhouse
Tattersalls Club
Network First
Style
Eureka Landscaping
Flight Centre Foundation
Morgans
CUB
Savills
Bruce Lynton
KFC Youth Foundation
MS Queensland
Carbone
Batercard
Coates
ALS
Taylor Byrne
QIC
Servcorp
Queensland Rail
Just Photography
MGD Private
Knight Frank
Select AV
Pilot
CV Services
DAE
One Harvest - love beats
MTAQ
Vantage Performance
Vuly
Clark Real Estate
Audio Visual Elements