0

Anthony's story

As told by Nikki Jones wife of Anthony Jones

Life can change in just an instant. And for Anthony, Nikki and Ella it has been a challenging journey.

At 48 years old, Anthony had a life-be-in-it attitude – he loved having his friends over and, having worked in the wine industry, he enjoyed going out for a good meal with his wife Nikki.

In 2004, Anthony started to complain about headaches and feeling generally unwell. Thinking Anthony might be feeling a bit fed-up with work and needing a break, Nikki organised a holiday to Bali.

Their trip to paradise was short-lived when Anthony collapsed and ended up in the Bali International Hospital. After multiple tests and scans, the doctors discovered Anthony’s headaches were a result of a melanoma tumour on his brain – unusually associated with a melanoma he had removed from his ear years before.

From this point on, Anthony and Nikki’s lives were never the same.

Anthony needed radiation treatment and as a result, acquired Radiation Neurosis and needed more surgery. Anthony’s right frontal lobe was removed; the area of the brain that controls short term memory, initiation and motivation, resulting in Anthony needing 24 hour supervision and care.

This immediately put a huge strain on Nikki, who works full time.

“I have become the glue that holds everything together, while having to work 4 days a week and look after Anthony and look after Ella and the house and deal with business debts and lawyers. I’m not used to being a carer. I’m used to living our lives together.”

The Youngcare At Home Care Grant came at a critical moment. Nikki used the grant for much-needed respite for herself and Ella to take some time away, just the two of them.

“Words can’t describe how thankful we are for the grant, and the little bit of oxygen that it gives to families that just need to be nurtured in a really really tough time” said Nikki.

The mental health and well-being of carers and family members is vital for them to remain caring for their loved one with enthusiasm and compassion. This short time away allowed Nikki and Ella to regroup and refocus, enabling them to maintain a healthy relationship with Anthony and each other.

With continuous care and support, Anthony’s doctors predict his health will continue to improve. For now, Nikki is happy to celebrate the small wins.

Thanks to the generous support of GIO; Youngcare At Home Care Grant sponsors, Nikki has enough funds for more respite for herself and Ella, allowing them both to live young and fulfilling lives, and ensuring Anthony is receiving quality and dignified care.

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

CV Services
Eureka Landscaping
Neals
Tradelink
Savills
McCabe Curwood
Thrifty
Spot Productinons
Just Cause Bunch
Birdsville Hotel
FKG
MTAQ
CUB
Queensland Rail
Hand Heart Pocket
MGD Private
De Luca Corp
Style
Ozdent
Vertica Capital
Aurora Adventures
Network First
MS Queensland
Coates
Audio Visual Elements
Collins Food
Vuly
ANZ
Women's Weekly
HSF
Motorola Solutions
J W Bell & Associates
Braggs Signs
Betta Home Living
One Harvest - love beats
Story Bride Hotel
Birdsville Social Club
Keystone
Good2give
Brisbane Airport
EY
Knight Frank
GNK
Merlo
Servcorp
Birdsville Roadhouse
MMO Interiors
Tattersalls Club
QIC
Sage
DAE
Queensland Government
Nova
LAS logo
Care Tech
Sleepy's
Forte Catering
Vantage Performance
Wolff Group
Channel Nine
Shine Lawyers
Carbone
Pilot
Morgans
Rivergum Homes
Batercard
Vincents
Just Photography
Tatts Group
ALS
Taylor Byrne
Clark Real Estate
Brighton Homes
Media Merchants
Hopgood Ganim
National Storage
Triffid
ALS Global
KFC Youth Foundation
AWIC - Awesome Women In Construction
Bunnamagoo
Cutting Edge
Bruce Lynton
Flight Centre Foundation
Select AV