0

Anthony's story

As told by Nikki Jones wife of Anthony Jones

Life can change in just an instant. And for Anthony, Nikki and Ella it has been a challenging journey.

At 48 years old, Anthony had a life-be-in-it attitude – he loved having his friends over and, having worked in the wine industry, he enjoyed going out for a good meal with his wife Nikki.

In 2004, Anthony started to complain about headaches and feeling generally unwell. Thinking Anthony might be feeling a bit fed-up with work and needing a break, Nikki organised a holiday to Bali.

Their trip to paradise was short-lived when Anthony collapsed and ended up in the Bali International Hospital. After multiple tests and scans, the doctors discovered Anthony’s headaches were a result of a melanoma tumour on his brain – unusually associated with a melanoma he had removed from his ear years before.

From this point on, Anthony and Nikki’s lives were never the same.

Anthony needed radiation treatment and as a result, acquired Radiation Neurosis and needed more surgery. Anthony’s right frontal lobe was removed; the area of the brain that controls short term memory, initiation and motivation, resulting in Anthony needing 24 hour supervision and care.

This immediately put a huge strain on Nikki, who works full time.

“I have become the glue that holds everything together, while having to work 4 days a week and look after Anthony and look after Ella and the house and deal with business debts and lawyers. I’m not used to being a carer. I’m used to living our lives together.”

The Youngcare At Home Care Grant came at a critical moment. Nikki used the grant for much-needed respite for herself and Ella to take some time away, just the two of them.

“Words can’t describe how thankful we are for the grant, and the little bit of oxygen that it gives to families that just need to be nurtured in a really really tough time” said Nikki.

The mental health and well-being of carers and family members is vital for them to remain caring for their loved one with enthusiasm and compassion. This short time away allowed Nikki and Ella to regroup and refocus, enabling them to maintain a healthy relationship with Anthony and each other.

With continuous care and support, Anthony’s doctors predict his health will continue to improve. For now, Nikki is happy to celebrate the small wins.

Thanks to the generous support of GIO; Youngcare At Home Care Grant sponsors, Nikki has enough funds for more respite for herself and Ella, allowing them both to live young and fulfilling lives, and ensuring Anthony is receiving quality and dignified care.

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

Brighton Homes
Hand Heart Pocket
One Harvest - love beats
Taylor Byrne
Network First
McCabe Curwood
Good2give
AWIC - Awesome Women In Construction
Triffid
Wolff Group
Hopgood Ganim
Clark Real Estate
Story Bride Hotel
Thrifty
Aurora Adventures
Neals
GNK
Birdsville Roadhouse
MMO Interiors
EY
Vertica Capital
Birdsville Social Club
Media Merchants
MGD Private
Sage
Queensland Government
Style
Bunnamagoo
ANZ
FKG
CV Services
De Luca Corp
Bruce Lynton
Eureka Landscaping
Motorola Solutions
Tattersalls Club
Morgans
Vuly
Spot Productinons
Batercard
HSF
Nova
QIC
LAS logo
KFC Youth Foundation
Betta Home Living
Just Photography
Carbone
Knight Frank
Servcorp
Vincents
Coates
Forte Catering
Select AV
Braggs Signs
Keystone
Birdsville Hotel
Tatts Group
CUB
Vantage Performance
MTAQ
Flight Centre Foundation
Audio Visual Elements
ALS
Merlo
Just Cause Bunch
MS Queensland
ALS Global
Pilot
Shine Lawyers
Women's Weekly
DAE
Cutting Edge
Collins Food
Queensland Rail
Care Tech
Channel Nine
Savills
Rivergum Homes