0

Anthony's story

As told by Nikki Jones wife of Anthony Jones

Life can change in just an instant. And for Anthony, Nikki and Ella it has been a challenging journey.

At 48 years old, Anthony had a life-be-in-it attitude – he loved having his friends over and, having worked in the wine industry, he enjoyed going out for a good meal with his wife Nikki.

In 2004, Anthony started to complain about headaches and feeling generally unwell. Thinking Anthony might be feeling a bit fed-up with work and needing a break, Nikki organised a holiday to Bali.

Their trip to paradise was short-lived when Anthony collapsed and ended up in the Bali International Hospital. After multiple tests and scans, the doctors discovered Anthony’s headaches were a result of a melanoma tumour on his brain – unusually associated with a melanoma he had removed from his ear years before.

From this point on, Anthony and Nikki’s lives were never the same.

Anthony needed radiation treatment and as a result, acquired Radiation Neurosis and needed more surgery. Anthony’s right frontal lobe was removed; the area of the brain that controls short term memory, initiation and motivation, resulting in Anthony needing 24 hour supervision and care.

This immediately put a huge strain on Nikki, who works full time.

“I have become the glue that holds everything together, while having to work 4 days a week and look after Anthony and look after Ella and the house and deal with business debts and lawyers. I’m not used to being a carer. I’m used to living our lives together.”

The Youngcare At Home Care Grant came at a critical moment. Nikki used the grant for much-needed respite for herself and Ella to take some time away, just the two of them.

“Words can’t describe how thankful we are for the grant, and the little bit of oxygen that it gives to families that just need to be nurtured in a really really tough time” said Nikki.

The mental health and well-being of carers and family members is vital for them to remain caring for their loved one with enthusiasm and compassion. This short time away allowed Nikki and Ella to regroup and refocus, enabling them to maintain a healthy relationship with Anthony and each other.

With continuous care and support, Anthony’s doctors predict his health will continue to improve. For now, Nikki is happy to celebrate the small wins.

Thanks to the generous support of GIO; Youngcare At Home Care Grant sponsors, Nikki has enough funds for more respite for herself and Ella, allowing them both to live young and fulfilling lives, and ensuring Anthony is receiving quality and dignified care.

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

Brighton Homes
MS Queensland
Knight Frank
Just Cause Bunch
Vincents
EY
De Luca Corp
Vantage Performance
Channel Nine
Clark Real Estate
Audio Visual Elements
Coates
Merlo
Neals
Sage
Cutting Edge
Select AV
Spot Productinons
Triffid
Pilot
Vuly
Queensland Government
Care Tech
Thrifty
DAE
Style
Vertica Capital
LAS logo
Tatts Group
Queensland Rail
Birdsville Hotel
Tattersalls Club
Network First
Flight Centre Foundation
KFC Youth Foundation
ALS
Taylor Byrne
Motorola Solutions
Forte Catering
Rivergum Homes
Birdsville Roadhouse
Bunnamagoo
MMO Interiors
Braggs Signs
Betta Home Living
FKG
Hopgood Ganim
QIC
Batercard
Aurora Adventures
Good2give
Eureka Landscaping
Nova
Media Merchants
McCabe Curwood
Morgans
MGD Private
ANZ
Keystone
Wolff Group
Shine Lawyers
Bruce Lynton
GNK
Women's Weekly
CV Services
MTAQ
Collins Food
Savills
HSF
Servcorp
Just Photography
Carbone
Birdsville Social Club
CUB
One Harvest - love beats
Story Bride Hotel
Hand Heart Pocket
ALS Global