0

Emily's Story

Even angels need help sometimes

Emily was medically diagnosed with Angelman Syndrome at four and a half years of age.

Angelman Syndrome is a genetic condition with symptoms such as intellectual disability, hyperactive behaviour, speech problems, feeding difficulties and epilepsy. Emily also has a beautiful, happy disposition.

“Angels don’t like to sleep, or rather not that they don’t like it, but that they don’t need it. Emily sleeps about 5 hours a night and it has been broken sleep for us for 21 years now.” Michelle

DONATE NOW

Michelle looking worriedly at Emily, who is smiling and standing at her modified bedroom door

All ‘angels’ require around the clock attention, which can be challenging for families, especially other children. As a single mother who is constantly exhausted Michelle does her absolute best to balance the needs of both of her daughters, but it can become extremely difficult at times.

GIVE NOW TO HELP FAMILIES LIKE MICHELLE’S

“Having that quality one on one time with Zoe is really hard.”

Due to carers stress and repetitive strain, Michelle suffered two prolapsed discs that crushed her L5 nerve, creating a drop foot. This makes caring for Emily full time even more difficult.

“That injury has been life-changing.” Michelle

YOU CAN HELP EASE THE BURDEN NOW

Michelle, Emily's support worker, Emily in her modified quad bike, and sister Zoe walking near the waterfront

Michelle is now getting the support that she and the girls need through Youngcare’s grants which provided funding for support workers and respite.

“I applied for the At Home Care Grant to fill the voids that we had in our lives. It’s given me the best of both worlds.”

YOU CAN HELP OTHER FAMILIES IN THIS SITUATION

To the people who have helped to make the grants possible, Michelle wants to say thank you.

“To have the support that the grants enable,allows us to do as much normal living as possible. It’s just so invaluable. Not just financially, but for what it does for us mentally as well.” Michelle

DONATE NOW

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

Birdsville Social Club
Shape
Vuly
Tatts Group
Hand Heart Pocket
Thrifty
Knight Frank
Cutting Edge
Media Merchants
Birdsville Roadhouse
ANZ
Wolff Group
Spot Productinons
Network First
Queensland Government
Savills
LAS logo
Braggs Signs
Flight Centre Foundation
Neals
Brazilian Beauty - Albany Creek
Batercard
Audi Centre Springwood
DAE
Kabuki
Pilot
MS Queensland
Triffid
Sage
Eureka Landscaping
Vincents
CUB
CV Services
KFC Youth Foundation
Servcorp
Merlo
EY
Vantage Performance
Duco Events
De Luca Corp
Queensland Rail
FKG
Morgans
Nova
Bruce Lynton
Forte Catering
Rivergum Homes
MGD Private
Good2give
Keystone
50-50 charity raffle
ALS
Birdsville Hotel
MTAQ
Coates
Carbone
Artis Pura
Clark Real Estate
MMO Interiors
Story Bride Hotel
Aurora Adventures
McCabe Curwood
One Harvest - love beats
Style
Channel Nine
Just Cause Bunch
Tattersalls Club
HSF
QIC
GNK
Hopgood Ganim
Bunnamagoo
Shine Lawyers
Taylor Byrne
Vertica Capital
Women's Weekly
Audio Visual Elements
Collins Food
Care Tech
Betta Home Living
Just Photography
Motorola Solutions
Abi and Joseph
Select AV