0

Emily's Story

Even angels need help sometimes

Emily was medically diagnosed with Angelman Syndrome at four and a half years of age.

Angelman Syndrome is a genetic condition with symptoms such as intellectual disability, hyperactive behaviour, speech problems, feeding difficulties and epilepsy. Emily also has a beautiful, happy disposition.

“Angels don’t like to sleep, or rather not that they don’t like it, but that they don’t need it. Emily sleeps about 5 hours a night and it has been broken sleep for us for 21 years now.” Michelle

DONATE NOW

Michelle looking worriedly at Emily, who is smiling and standing at her modified bedroom door

All ‘angels’ require around the clock attention, which can be challenging for families, especially other children. As a single mother who is constantly exhausted Michelle does her absolute best to balance the needs of both of her daughters, but it can become extremely difficult at times.

GIVE NOW TO HELP FAMILIES LIKE MICHELLE’S

“Having that quality one on one time with Zoe is really hard.”

Due to carers stress and repetitive strain, Michelle suffered two prolapsed discs that crushed her L5 nerve, creating a drop foot. This makes caring for Emily full time even more difficult.

“That injury has been life-changing.” Michelle

YOU CAN HELP EASE THE BURDEN NOW

Michelle, Emily's support worker, Emily in her modified quad bike, and sister Zoe walking near the waterfront

Michelle is now getting the support that she and the girls need through Youngcare’s grants which provided funding for support workers and respite.

“I applied for the At Home Care Grant to fill the voids that we had in our lives. It’s given me the best of both worlds.”

YOU CAN HELP OTHER FAMILIES IN THIS SITUATION

To the people who have helped to make the grants possible, Michelle wants to say thank you.

“To have the support that the grants enable,allows us to do as much normal living as possible. It’s just so invaluable. Not just financially, but for what it does for us mentally as well.” Michelle

DONATE NOW

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

Nova
Bunnamagoo
EY
Good2give
ANZ
McCabe Curwood
Taylor Byrne
Morgans
Merlo
Coates
Collins Food
Aurora Adventures
Betta Home Living
Flight Centre Foundation
Vuly
MS Queensland
ALS
Forte Catering
GNK
Channel Nine
FKG
Shine Lawyers
Just Photography
MGD Private
Vincents
Hopgood Ganim
Carbone
Women's Weekly
Keystone
De Luca Corp
Bruce Lynton
Tatts Group
LAS logo
Thrifty
Tattersalls Club
Hand Heart Pocket
National Storage
Neals
HSF
KFC Youth Foundation
Wolff Group
Servcorp
Media Merchants
QIC
Care Tech
Braggs Signs
Batercard
Pilot
Vertica Capital
Audio Visual Elements
Network First
MMO Interiors
CV Services
Sage
Select AV
Cutting Edge
Eureka Landscaping
Triffid
Style
Birdsville Roadhouse
One Harvest - love beats
Motorola Solutions
Knight Frank
Rivergum Homes
Brisbane Airport
DAE
Story Bride Hotel
Vantage Performance
Spot Productinons
MTAQ
ALS Global
Savills
Queensland Rail
Just Cause Bunch
Queensland Government
Birdsville Social Club
Clark Real Estate
AWIC - Awesome Women In Construction
Sleepy's
Birdsville Hotel
CUB
Brighton Homes