0

Stephanie's Story

Stephanie loves going out, socialising with her friends and has a passion for animals – in particular training her assistance dog Moe. She is also a 29-year-old women living with Ataxia-telangiectasia.

Steph’s disability is degenerative, which means that over time she has lost the coordination to control her motorised wheelchair by herself. In addition, she now finds it difficult and tiring to sit upright in her wheelchair all day.

For this reason, Steph and her family decided to apply for a ‘tilt-in-space’ wheelchair that is better suited to Steph’s care needs and will be more comfortable for her when she goes out. Steph also uses an all-terrain wheelchair, which weighs over 100kgs that she can use when she is out with the horses. The problem with these chairs is that they are bulky and hard to lift. This makes it impossible to fit into a regular car, and requires a disability modified van for transport.

“We’ve put off buying a van forever, knowing the expense and everything involved. But it came to crunch time and we needed it so we could get her around safely. It was getting to the stage where Steph was too tired and didn’t want to do the transfer – she didn’t want to go out anymore,”

“We had to do something before her condition deteriorated more so it didn’t impact on her quality of life. And I’m getting old too, so I have issues with the lifting and transfers too – I can do it twice and that is about it, that’s my limit.” Beverley, Steph’s Mum.

The difficulty of getting out into the community was affecting not only Steph and Beverley’s physical health, but also beginning to affect Steph’s mental health.

“It put her off wanting to go anywhere and do things, knowing that we can only take the smaller chair, which means she never felt safe. So then she would have anxiety and all the normal things related from when you’re stressed out, it caused a lot of worry.”

With her modified van, Steph will be able to go out like any other young woman, and enjoy her young life in the community. She goes out every day to different activities, like arts and crafts, cooking, as well as attending her horsemanship course. Steph is also looking forward to going on more holidays, to places like Hervey Bay or the Gold Coast.

The van is big enough to fit two wheelchairs, and Steph’s other equipment. This means that no matter where she goes, she will be confident knowing that she has everything she needs to travel freely and safely.

Beverley says that without your valuable donations, Steph’s life would have been much harder. When applying to the NDIA for assistance funding the van, Beverley who is 53 years old, was told to use her Superannuation to help cover the cost of the van.

To you, the people who help to make this happen, Steph would like to say:

“Thank you. Because of Youngcare I can go out more, I can stay independent and stay happy.”

Are you a young person seeking help?

What we do

GET INFO

Get Help

GET INFO

Contact Us

GET INFO

A huge thanks to our supporters 

MTAQ
Knight Frank
Triffid
Tattersalls Club
Forte Catering
Cakes & Sh!t
MGD Private
Tradelink
Brighton Homes
MS Queensland
Birdsville Hotel
De Luca Corp
Brisbane Airport
Queensland Government
Motorola Solutions
Nova
Shine Lawyers
Care Tech
Batercard
ALS Global
Just Photography
CV Services
Media Merchants
Braggs Signs
DAE
Style
Vincents
Aurora Adventures
Just Cause Bunch
Vertica Capital
IOR Petroleum
Sleepy's
Thrifty
McCabe Curwood
MMO Interiors
Women's Weekly
The Co Group
J W Bell & Associates
Coates
Cutting Edge
CUB
Story Bride Hotel
Eureka Landscaping
HSF
Flight Centre Foundation
FKG
Audio Visual Elements
Wolff Group
National Storage
Hand Heart Pocket
Select AV
Merlo
Sage
Clark Real Estate
Channel Nine
BDO
Servcorp
Collins Food
Network First
ALS
Une Parkinson Foundation
Keystone
Canvas Art Factory
Birdsville Roadhouse
Neals
Betta Home Living
LAS logo
EY
Queensland Rail
Spot Productinons
Hopgood Ganim
Birdsville Social Club
Taylor Byrne
One Harvest - love beats
Vantage Performance
Savills
Doug Hall Foundation
Bruce Lynton
AWIC - Awesome Women In Construction
Pilot
ANZ
Carbone
Morgans
Vuly
Bunnamagoo
Ozdent
Tatts Group
Rivergum Homes
Good2give
QIC
Broncos Charity Fund
Skip to content